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First, you are diagnosed with a serious, life changing disease, next, are you supposed to tell your doctor(s) to wash their hands? This training session called “Family Centered Patient Advocacy" will help the patient or advocate prepare for someone to enter the hospital, or help families cope when someone is newly diagnosed with a medical condition. This program is designed to help families understand and navigate the healthcare system for safe, quality care.
Training will follow the "Family Centered Patient Advocacy, A Training Manual", which includes the contributions of more than a dozen nationally recognized patient safety leaders, is now available. This manual is the first of its kind to guide families and friends in taking an active role in the medical care and treatment of those who are important to them. This manual explains the unique role of the patient advocate and includes important, practical information about:
• Getting the most out of office visits,
• Avoiding medication and diagnostic errors,
• What to do while the patient is in the hospital,
• Preparing for emergencies,
• What everyone should know about health insurance,
Following this workshop can be training for healthcare professionals or community members to become Community Health Educators!
Table of ContentsAcknowledgements
Preface
Introduction
Chapter 1. The Patient Advocate
Chapter 2. Helping the Patient Prepare for the Doctor
Chapter 3. In the Doctor’s Office
Chapter 4. Medication Safety
Chapter 5. In the Hospital
Chapter 6. Surgery
Chapter 7. Anesthesiology
Chapter 8. Staying Safe in the Emergency Department
Chapter 9. Steering Clear of Diagnostic Errors
Chapter 10. Health Insurance Advice for Everyone
Conclusion
Resources
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Contributors Include:
Anna Baracchini, R.N., M.A., C.P.H.Q
Assistant Vice President, Care Management/Performance Improvement
St. Francis Hospital, Roslyn, New York
Charles Bruzzone M.D.
Old Country Pediatrics
Plainview, New York
Mark Graber, M.D.
Chief, Medical Service, VAMC Northport LI
Prof. and Assoc. Chair, Department of Medicine
State University of New York at Stony Brook
Doreen Guma, M.A.,C.H.E.
Lin Osborn, M.A., C.F.E.
Founder and Director of Health Plan Navigator, LLC
Founding Member, Medical Review Associates
Donald Parsons, M.D.
Colorado Patient Safety Coalition board
Matthew Rice, M.D., J.D., FACEP
Northwest Emergency Physicians of TEAMHealth
Manual Advisor's Laura K. Botwinick, M.S.
Vice President, Joint Commission Resources
Co-Director, Joint Commission International Center for Patient Safety
C. Lynn Chevalier, D.H.Sc(c), M.P.H., C.P.C.
Director, Quality Services, Next Wave, Inc.
Adjunct Faculty, Health Professions Division
Nova Southeastern University
Michael R. Cohen, R.Ph., M.S., ScD.
President
Institute for Safe Medication Practices
James Conway
Senior Vice President,
Institute for Healthcare Improvement
Senior Consultant, Dana-Farber Cancer Institute
Board Chair, Health Care Dimensions Hospice
Cathy Lake
Surgicalfires.org
Robert M. Wachter, M.D.
Professor and Associate Chairman, Department of Medicine.
University of California, San Francisco.
Chief of the Medical Service.
UCSF Medical Center Editor, AHRQ WebM&M (http://www.webmm.ahrq.gov) and
Patient Safety Network (http://www.psnet.ahrq.gov)
Albert W. Wu, M.D., M.P.H. Professor
Health Policy and Management.
Johns Hopkins Bloomberg School of Public Health.
About the Authors:
Ilene Coirna is the President and founder of PULSE of NY, a community based patient safety organization. She began her work as a patient safety advocate more than ten years ago after the death of her son from a preventable medical error. Ms. Corina is a recognized lecturer and community health educator. She speaks throughout the country at hospitals and healthcare organizations about the patient’s and patient advocate’s role in patient safety.
Ms. Corina is on the Board of Governors of the National Patient Safety Foundation and helped develop the NPSF Patient and Family Advisory Council, which she co-chaired from 2002-2006. She is a Public Member of the board of The Joint Commission and advises numerous committees and organizations on patient safety issues. Ms. Corina is the author of a soon-to-be-released book entitled Teaching Patient Safety, An Educator’s Guide, which helps educators talk about patient safety in the community.
Eve Shapiro, Bethesda, MarylandEve Shapiro is a medical writer dedicated to improving physician-patient communication and patient safety by writing for health professionals and the general public. Ms. Shapiro has written for the Agency for Healthcare Research and Quality, The Commonwealth Fund, the Institute for Healthcare Improvement, The Joint Commission, the Robert Wood Johnson Foundation, the University of Michigan Health System, and other organizations. She is also a Senior Scholar at the Thomas Jefferson Medical College Department of Health Policy.
This project was made possible with funding from:
Gilead Sciences Inc., Long Island Unitarian Universalist Fund, National Patient Safety Foundation, North Shore-Long Island Jewish Health System, and N.Y. State Senator Kemp Hannon.
Teaching Patient Safety
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